On February 26 at the Central Military Club in Sofia, the Association of Medical Students in Bulgaria (ASMB) celebrated its 25th anniversary with a charity ball, organized together with the National Alliance of People with Rare Diseases (NAHRB) for the benefit of children suffering from Williams Syndrome. The ball was also held on the occasion of Rare Disease Day - February 28, which is celebrated for the 8th time in a row in our country this year
The new chairman of the Parliamentary Committee on He alth, Dr. Daniela Daritkova, was one of the official guests at the Charity Ball. Here is what Dr. Daritkova shared:
“It is an honor for me that on my first day as the chairman of the He alth Care Committee in this National Assembly, I am at this holiday. Over the years, we have taken our small steps in providing better treatment for people with rare diseases. There are new regulatory documents that improve their access to treatment, there is a new clinical pathway for the treatment of one of these diseases, and the creation of a registry for rare diseases is pending. I know all this is not enough for people who have such diseases, but we will really continue to be with them and support them. We will also work to introduce European practices in their treatment.”
The event was also attended by the Deputy Ministers of He alth Dr. Adam Persenski and Dr. Vanyo Sharkov, highly respected doctors from Sofia and the country, dozens of medical students, parents and children with rare diseases.
Read more about rare diseases in the new issue of "Doctor" magazine, which will be published on March 2.
